Hepatitis C affects approx. 250,000 Canadians; many of whom are marginalized. While there are a number of public and private databases available in Canada which provide healthcare professionals valuable information to help diagnose people requiring Hep C treatment, none of the available databases act as a single source of information which means the required information has be pieced together from multiple sources before a diagnosis can be confirmed. This often increases loss to follow up rates and unnecessary re-testing in marginalized patients and priority patient populations (many of whom have already done all of the required testing). In addition, most databases are restricted to clinicians and do not communicate or share real-time information with community-based agencies.
Furthermore, inconsistent provider workflows, lack of proper patient consent and education, dispensing of large medication quantities, industry politics/competition and discrimination against marginalized people and those of who use drugs are leading to suboptimal treatment outcomes and higher reinfection rates in our communities. At $40,000 to $60,000 per treatment, we need to act responsibly, we need to work together, and we need a universal database where all providers can communicate and collaborate to better support marginalized patient communities.
HepCURE is pleased to announce that it has established the Hep C Registry which provides real time statistics and meaningful insights into the patient journey and allows multidisciplinary healthcare professionals and their teams to work together to eliminate duplicate workflows and processes to optimize diagnosis and treatment.
The Hep C Registry is fully compliant with Canadian privacy regulations, is multilingual and was developed over a 24-month period based on direct field experiences collected by HepCURE staff within a variety of clinical settings; including: pharmacies, safe injection sites, meal programs, drop-ins, respites, and shelters/hotel programs; representing over 2000 participants (both pre/post COVID-19).
The Hep C Registry is available to all organizations who offer or are interested in offering community based Hep C programming on a subscription basis and ensures proper documentation of patient consent, treatment, adherence monitoring, data collection/reporting and workflow optimization to deliver a unparalleled patient experience.
For more information on the Hep C Registry and how to become a HepCURE Member please call: 1-833-HEPCURE (437-2873).